020 7042 5800 - 9:00am to 5:00pm - Mon to Fri
Are you living with Von Willebrand Disease?
You are the expert on your own VWD experience. We want to learn from you to help improve care for everyone living with this condition.

What we want to learn from you:

Your daily reality - how does VWD affect your work, relationships and daily activities?
Your bleeding patterns - when bleeds occur, how severe they are and what triggers them?
Your treatment use - what treatments do you use for your bleeds?

What is the study?

"Velora Discover" is a diary study where we invite you to share your real experience of VWD. It is run by Richmond Pharmacology on behalf of Hemab Therapeutics. (Trials4Us is the part of Richmond that runs our recruitment.)
The information we gather will help researchers develop potential treatments to prevent bleeding in people with VWD - fewer bleeds, less disruption, better quality of life.
Help shape the future of VWD treatment
and earn £968 for your time
Find Out More

What to expect

keyboard_arrow_down

If you are eligible, we’ll arrange an appointment where we carry out a short physical examination. We’ll give you an electronic diary and show you how to use it to record your bleeds and other symptoms daily. We’ll also inform you about some questionnaires to complete on specific days.

Over the next 4-6 months, we’ll keep in touch with telephone calls and may invite you to visit our research clinic.

Where does the study take place? 

keyboard_arrow_down

After an initial visit to Richmond Pharmacology’s clinic near London Bridge, you will be recording entries in an electronic diary from your own home, in your own time, with only a couple more visits to the clinic required.

We are happy to arrange and pay for your transportation to and from our London clinic. 

Help shape the future of VWD treatment. Your experience matters.
Your information is encrypted and 100% confidential.