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Nicotine Restrictions
Are you living with Von Willebrand Disease?
Your daily experience matters. Help us understand VWD better, and help researchers develop potential treatments to prevent bleeding.
What we want to learn from you:
- Your daily reality - how does VWD affect your work, relationships and daily activities?
- Your bleeding patterns - when bleeds occur, how severe they are and what triggers them?
- Your treatment use - what treatments do you use for your bleeds?
What is the study?
"Velora Discover" is a diary study where we invite you to share your real experience of VWD. It is run by Richmond Pharmacology on behalf of Hemab Therapeutics. (Trials4Us is the part of Richmond that runs our recruitment.) The information we gather will help researchers develop potential treatments to prevent bleeding in people with VWD - fewer bleeds, less disruption, better quality of life.
What to expect
If you are eligible, we’ll arrange an appointment where we carry out a short physical examination. We’ll give you an electronic diary and show you how to use it to record your bleeds and other symptoms daily. We’ll also inform you about some questionnaires to complete on specific days. Over the next 4-6 months, we’ll keep in touch with telephone calls and may invite you to visit our research clinic.
Where does the study take place?
After an initial visit to Richmond Pharmacology’s clinic near London Bridge, you will be recording entries in an electronic diary from your own home, in your own time, with only a couple more visits to the clinic required. We are happy to arrange and pay for your transportation to and from our London clinic.
Payment
Receive £968 in recognition of your time
Approval
The contents of this email have been approved by an ethics committee. Any response to this advertisement will be recorded. Your response will not place you under any obligation to participate in this trial.
You may be required to remain resident in the unit until resolution of any safety issues, after which you will be discharged from the unit.
Ref: C23024_Jul_2024 (email_website_advert text)
